Videos and References

Videos

Here is a collection of interesting videos about Rett Syndrome
The video below features a family with a child with Rett Syndrome. It is a good look into the lives of a family effected by the disorder.


Below is a piece that the View did on Rett Syndrome.


Below is an example of the hand wrining gestures that are typical in Rett Syndrome.


Below is an example of a music therapy session. Music therapy has been found to be very beneficial to those with Rett Syndrome, as it promotes use of the hands.

References

Here is a collection of references that will help you investigate Rett Syndrome further.

 https://www.rettsyndrome.org/  This is a great resource for information out the disorder and provides useful links for families.
http://www.girlpower2cure.org/who-we-are/rett-syndrome.aspx This infromative website allows you to meet girls that are effected by the disorder.
http://rettsyndrome.wordpress.com/  This blog is written by parents of children with the disorder.
http://www.mychildwithoutlimits.org/understand/rett-syndrome/rett-syndrom-treatment/  This is another informative website that has good information about treatment.
Music Therapy and Rett Syndrome http://www.themusictherapycenter.com/sites/default/files/images/factsheets/mtcca_rett.pdf This pdf provides good information about the disorder and how music theraphy can help.